Cancer victim forced to sell home to buy life-extending drug (From Dorset Echo)
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Cancer victim forced to sell home to buy life-extending drug
8:47am Wednesday 20th March 2013 in News
By Joanna Davis
'I'm selling my home to buy cancer drugs': A Weymouth woman's bid to afford 'miracle' drug
A TERMINALLY ill woman is selling her home to pay for a cancer drug that offers her weeks of extra life.
Svetlana Savrasova, of Weymouth, was diagnosed with stage three ovarian cancer three years ago.
She was told she had just a few weeks to live.
But following the diagnosis, Ms Savrasova has continued to row with Weymouth Rowing Club and to go ballroom dancing.
The Russian-born 51-year-old has been taking Avastin – a ‘miracle’ life-extending cancer drug and is now preparing to visit her son in Australia.
Ms Savrasova, who is living in rented accommodation on Weymouth Esplanade, previously sold a Picasso drawing worth £40,000, which she received from her former husband, to pay for Avastin, which is not available on the NHS.
Her home is on the market so she can fund further doses of the cancer drug. She is hoping to sell the flat in Hanover Road, Weymouth, for £100,000 to help her pay for the treatment.
Former Soviet journalist Svetlana has paid more than £6,000 for private treatment at Poole General Hospital, with each drip of Avastin costing £3,189, prolonging her remission from cancer.
She is calling for the drug to become available to cancer patients on the NHS as she prepares to pay for two more drips over the coming weeks.
Ms Savrasova said: “I have paid more than £6,000 for two drips.
“I want this money back. I should have this drug on the NHS.
“I know my condition is terminal. Avastin is a maintenance drug. There is no cure for my condition.
“I know that I’m playing for time. They say Avastin will give me four months. It’s given me 11 months. Every month passing, moving further and further from chemotherapy I feel better and better.”
Ms Savrasova is calling for a £6,000 refund from NHS Dorset for the money she has paid.
She said: “I know my condition is terminal but I just want to do everything I can to enjoy myself before I go.”
Ms Savrasova, who used to work for Dorset Police as an interpreter, said she wants NHS Dorset to negotiate for the drug from its manufacturers Roche.
Before buying the drug from the NHS she had 22 drips funded by Roche’s compassionate fund.
Ms Savrasova’s consultant oncologist Dr Richard Osborne has requested Avastin for her as ‘maintenance therapy’, based on evidence from a trial that it could prolong second remission from ovarian cancer.
In a letter to NHS Dorset’s then-chief executive Paul Sly, he wrote: “I would be grateful if you could explore whether there are any other avenues for funding Ms Savrasova’s treatment.”
But NHS Dorset health chiefs didn’t support the request.
Ms Savrasova’s GP, Dr Huw Llewellyn, supported an appeal against NHS Dorset’s decision not to fund the treatment.
Dr Osborne requested further consideration of the decision but a panel decided that Ms Savrasova was ‘not clinically exceptional from other patients’ for whom Avastin treatment ‘was not commissioned on the basis of limited clinical evidence’.
A SPOKESMAN for NHS Dorset said: “We are unable to comment on individual cases for reasons of confidentiality.
“However, we can confirm that we have been in regular correspondence
with Ms Savrasova for a number of years in relation to her treatment and have explained all decisions in full.”
A SPOKESMAN for Roche Products said the company is working with Nice – the National Institute for Health and Clinical Excellence – to secure a positive recommendation for using Avastin in combination with chemotherapy for women with ovarian cancer, as well as for women with recurrent ovarian cancer.
She said: “Avastin is currently available in England through the Cancer Drug Fund (CDF).
“This fund, which was set up in April 2011, provides access to cancer drugs, which are in the process of being reviewed or have been rejected by NICE.
“In the South West SHA, this medicine is approved for use through the CDF for women with ovarian carcinoma in combination with carboplatin and paclitaxel’
“It is available for first line advanced (stage IIIc/IV) ovarian cancer, either sub-optimally debulked at primary or delayed primary surgery, or not suitable for debulking surgery.”
Comments(45)
Swerving
says...
11:23am Wed 20 Mar 13
Just bear in mind if the NHS pays for her treatment, there will be less money to pay for treatment for people who have paid in to the system all thir lives.
I thikn there is more to this story than we are being told!
louise744
says...
12:00pm Wed 20 Mar 13
Swerving wrote:well said
If she sold the drawing for £40,000, and has paid £6,000, she still has £34,000 to spend.
Just bear in mind if the NHS pays for her treatment, there will be less money to pay for treatment for people who have paid in to the system all thir lives.
I thikn there is more to this story than we are being told!
patience567
says...
12:16pm Wed 20 Mar 13
Swerving wrote:The NHS delivers treatment to everyone, regardless of their ability to pay, and I hope it remains that way. If there is more to this story why don't you tell us instead of alluding to something that may not even exist.
If she sold the drawing for £40,000, and has paid £6,000, she still has £34,000 to spend.
Just bear in mind if the NHS pays for her treatment, there will be less money to pay for treatment for people who have paid in to the system all thir lives.
I thikn there is more to this story than we are being told!
Sidney Hall
says...
12:21pm Wed 20 Mar 13
JamesYoung
says...
1:13pm Wed 20 Mar 13
Sidney Hall wrote:Then there is the issue of how the results are measured. A well known Australian study found that across all cancers, less than 2.5% of patients benefited from chemotherapy. And even this figure is skewed by the benefit for a small number of cancers - chemo for breast cancer apparently offers only 1.5% of people a chance to live five years (important: this doesn't mean that only 1.5% of breast cancer patients will survive 5 years, it means that only 1.5% of survivors will survive that long because of chemo treatment. It also doesn't include patients who have chemo to treat symptoms rather than to prolong life).
We need a better method of buying these medicines. Pharmaceutical companies do spend a lot on research, but also make a lot of money. This drug is expensive and could bankrupt the NHS. Pharma companies often pitch their prices to what they think the people in the country will tolerate - a bit like price matching on a global scale. Its a pity they cant be more affordable. A terrible story - right now I am consciously valuing my reasonable health after reading this.
http://www.ncbi.nlm.
nih.gov/pubmed/15630
849
Yet we all believe chemotherapy is an unpleasant life saver, rather than a convenient money spinner peddled on false hope.
And then there's the millions that drugs companies get fined every year for falsifying results.
JamesYoung
says...
1:16pm Wed 20 Mar 13
patience567 wrote:I'm not sure that there is more to the story in relation to this lady, and she has my best wishes.
Swerving wrote:The NHS delivers treatment to everyone, regardless of their ability to pay, and I hope it remains that way. If there is more to this story why don't you tell us instead of alluding to something that may not even exist.
If she sold the drawing for £40,000, and has paid £6,000, she still has £34,000 to spend.
Just bear in mind if the NHS pays for her treatment, there will be less money to pay for treatment for people who have paid in to the system all thir lives.
I thikn there is more to this story than we are being told!
However, the keen eyed will have noticed the words "in England".
The Barnett Formula, which distributes public spending across England, Scotland, Wales and Ireland, means that the latter three groups receive more per capita than England does.
This means that a Scot gets £1500 more spent on him per year and a Welshman, £1000.
As a consequence, more drugs are available in Scotland and Wales, Scottish students get free tuition fees and you don't have to sell your house when you go into care.
monkeydog
says...
2:34pm Wed 20 Mar 13
Swerving wrote:I hope you and Louise 744, when in need of help, are in receipt of less callous and ignorant comments. Ms Savrasova has worked in this country for some time and has contributed towards the NHS just like the rest of us and deserves treatment just like us. Her story is a timely reminder of the failings of our society and, if you are healthy, just be grateful. Do you seriously believe the lady in question doesn't have other demands on her finances? What she does with her money is her affair especially when she is having to pay for her own treatment and I'm sure she can do without your insensitive and, quite frankly, stupid comments.
If she sold the drawing for £40,000, and has paid £6,000, she still has £34,000 to spend.
Just bear in mind if the NHS pays for her treatment, there will be less money to pay for treatment for people who have paid in to the system all thir lives.
I thikn there is more to this story than we are being told!
patience567
says...
3:49pm Wed 20 Mar 13
niceonecyril
says...
4:36pm Wed 20 Mar 13
monkeydog wrote:Welcome to the real Weymouth, if the comments on these pages concerning other people suffering are anything to go by then they are selfish arrogant and uncaring with huge holier than thou attitudes.
Swerving wrote:I hope you and Louise 744, when in need of help, are in receipt of less callous and ignorant comments. Ms Savrasova has worked in this country for some time and has contributed towards the NHS just like the rest of us and deserves treatment just like us. Her story is a timely reminder of the failings of our society and, if you are healthy, just be grateful. Do you seriously believe the lady in question doesn't have other demands on her finances? What she does with her money is her affair especially when she is having to pay for her own treatment and I'm sure she can do without your insensitive and, quite frankly, stupid comments.
If she sold the drawing for £40,000, and has paid £6,000, she still has £34,000 to spend.
Just bear in mind if the NHS pays for her treatment, there will be less money to pay for treatment for people who have paid in to the system all thir lives.
I thikn there is more to this story than we are being told!
greenglasses
says...
8:21am Thu 21 Mar 13
Unfortunatly this story is not a one off and I can only hope my treatment contiues to work
rozmister
says...
10:04am Thu 21 Mar 13
When weighing up paying for life prolonging treatment for one person and life SAVING treatment for another the best option is the life SAVING treatment. I know that is cold and callous and, as I said, in an ideal world there would be drugs available for both treatments whilst pharmaceutical companies charge high prices for drugs not everyone can have what they would like.
I wish Ms. Savrasova all the best for the future.
blobby96
says...
11:35am Thu 21 Mar 13
patience567
says...
6:09pm Thu 21 Mar 13
rozmister wrote:Everybody dies. People cost one or two thousand pounds per week in nursing homes or in end of life care.
While I really feel for this woman and, in an ideal world, the drugs should be available to her the NHS is not infinite pot of money.
When weighing up paying for life prolonging treatment for one person and life SAVING treatment for another the best option is the life SAVING treatment. I know that is cold and callous and, as I said, in an ideal world there would be drugs available for both treatments whilst pharmaceutical companies charge high prices for drugs not everyone can have what they would like.
I wish Ms. Savrasova all the best for the future.
patience567
says...
6:13pm Thu 21 Mar 13
rozmister wrote:Everybody dies. People cost one or two thousand pounds per week in nursing homes or in end of life care.
While I really feel for this woman and, in an ideal world, the drugs should be available to her the NHS is not infinite pot of money.
When weighing up paying for life prolonging treatment for one person and life SAVING treatment for another the best option is the life SAVING treatment. I know that is cold and callous and, as I said, in an ideal world there would be drugs available for both treatments whilst pharmaceutical companies charge high prices for drugs not everyone can have what they would like.
I wish Ms. Savrasova all the best for the future.
patience567
says...
6:49pm Thu 21 Mar 13
LennoxStreet
says...
9:37pm Thu 21 Mar 13
from April 2011 ROCHE gives drug for free, but Paul Sly decided to charge this woman 6k+. Why? How come it possible? Will they take my money also if I goes cancer? BTW - Dorset PTC far from debts. They will finish fin-year in April with hefty surplus. What they do with money?
Von Karajan
says...
10:54pm Thu 21 Mar 13
LennoxStreet
says...
11:23pm Thu 21 Mar 13
cj07589
says...
8:26am Fri 22 Mar 13
patience567 wrote:Exactly!! It gross mis-appropriation of funds by these over payed zealots which has help create terrible situations like this. I wish Ms Savrasova the very best of fortune.
There always seems to be enough money to pay the chief executive and his paladins.
rozmister
says...
10:34am Fri 22 Mar 13
patience567 wrote:Which is why when some older people are in the last stages of life food and water are withdrawn to allow them to die. Because keeping them alive at all costs isn't cost effective.
rozmister wrote:Everybody dies. People cost one or two thousand pounds per week in nursing homes or in end of life care.
While I really feel for this woman and, in an ideal world, the drugs should be available to her the NHS is not infinite pot of money.
When weighing up paying for life prolonging treatment for one person and life SAVING treatment for another the best option is the life SAVING treatment. I know that is cold and callous and, as I said, in an ideal world there would be drugs available for both treatments whilst pharmaceutical companies charge high prices for drugs not everyone can have what they would like.
I wish Ms. Savrasova all the best for the future.
We may all die eventually but there's a difference between helping someone to survive for another 20 - 30 years and helping them live for another year.
LennoxStreet
says...
4:46pm Fri 22 Mar 13
amaninjapan
says...
1:00am Sun 24 Mar 13
Desk24
says...
4:13pm Sun 24 Mar 13
svetlana savrasova
says...
12:22am Mon 25 Mar 13
2. As of April 2011 Avastine started to be available to cancer patients from Roche via CAncer Drug Fund. I was defected the drug by NHS in November 2011 because as Dr Flubacher said in 2010 (I've begged for Avastine from day one) "it's economically not viable; it will give you only 4 months more to live and it is very expensive drug". 3. The flat that I have to sell is not my home, but the property I by to let after divorce. 4. I am not poor as such. Especially as I don't need to safe for old age. I'll never be old. I am just very scared that Roche compaction will come to end. There is life support treatment in China - it cost around 35k for 6 months. i want this 6 months if i can have it. Also I have paid privately for scans, USG, surgeon consultation - just to jump waiting lists. Note that in Australia eg 42,5% of women with my diagnosis survive more than 5 years. In UK only 35%. What happens to 7.5% British women? NHS kills them. Kills us. By waiting. Before I became diagnosed I worked a lot and duly paid 45% taxes. They where spent against my wish for
Afghan and Iraqi wars... All money I receive as disability allowance I give to Cancer Research - as there is no any progress in ovarian cancer for 20 years! And oncologists do not expect any cure for next 15 years. Just life prolonging measures
I was singled out by NHS: I was the only Top-up cancer patient in 2011 who was asked to pay for the drug while Drug Fund finished financial year with surplus. Why? I want my money back. Even if want to blow them.
svetlana savrasova
says...
12:25am Mon 25 Mar 13
svetlana savrasova
says...
12:30am Mon 25 Mar 13
Von Karajan
says...
9:31am Mon 25 Mar 13
JamesYoung
says...
12:45pm Mon 25 Mar 13
Von Karajan wrote:Hear hear.
Dear Miss Savrasova, I wish you the very best in your fight for the treatment that you need. Unfortunately as you've found out, the system stinks in this country as to how money is allocated on funding for the NHS,etc. As many of us comment on these sites we find out the hard way that after working and paying taxes when we actually need something back we don't get the help from the system we paid into! I hope we can hear some good news about this soon! Regards and Best Wishes to you!
NHS spending allocation is a travesty.
LennoxStreet
says...
8:05am Tue 26 Mar 13
RACE4LIFE
says...
7:27pm Tue 26 Mar 13
Now you can experience what it has been like for men for decades...don't blame the comment..look at where it comes from and why. It always comes around.
I sympathise with you as a human being, but as a woman, in tune with the attitudes of women today
..WOMAN UP..STOP WHINING YOU CAN TAKE IT..YOUR NOT IMPORTANT !
RACE4LIFE
says...
7:32pm Tue 26 Mar 13
.co.uk/news/article-
2299233/I-got-4-800-
boob-job-NHS-Boast-K
atie-Price-wannabe-2
2-breasts-enlarged-m
odel--YOU-paid-them.
html?ITO=1490&ns_mch
annel=rss&ns_campaig
n=1490
BTW, lets embrace liberated women and 50 years of feminist product. The money for your cancer is being spent on this "liberated woman"
Congratulations ladies.
JACKC
says...
7:33pm Tue 26 Mar 13
RACE4LIFE
says...
7:39pm Tue 26 Mar 13
RACE4LIFE
says...
7:40pm Tue 26 Mar 13
JACKC wrote:Of course I am sure you are not angered when women are given it and men ignored..show me the last time you vented your anger at men being treated this way please? No,...thought not.
What disgraceful comments there are on this subject. I am always angered when some people make comment on when treatment should and shouldn't be given on the NHS. Who are we to judge whether someone is 'worth' the cost of an expensive drug? There but for the grace of God go I ..is never a truer sentiment in this case. Good luck to you Miss Savrasova, you must be feeling pretty desperate and miserable as it is, and I only hope those who don't think you should be given this drug (for whatever reason) are never in your position. The medical 'ethics' in this country are hypocritical, on the one hand people are denied treatment due to cost, and on the other sick/elderly people are not allowed to die with dignity when they so chose, in the way they chose.
LennoxStreet
says...
7:52pm Tue 26 Mar 13
But we are here discussing NHS politics towards the patient that has cancer, mate. It happened to be a woman with ovarian cancer in this case, but it could be man with testicle tumor. All the same.
RACE4LIFE
says...
8:16pm Tue 26 Mar 13
LennoxStreet wrote:I am also talking about NHS policies towards cancer, as well as race4life, cancer research and most things like this subject. Look at the facts. Then you might understand my point.
RACE4LIFE - your bitterness is awesome, poor tormented soul you are.
But we are here discussing NHS politics towards the patient that has cancer, mate. It happened to be a woman with ovarian cancer in this case, but it could be man with testicle tumor. All the same.
It is unfortunate that one has to make a point on the back of such an unfortunate subject, but it is relevant, even if seeming uncomfortable i'm afraid.
I am not tortured or bittered, trust me...I just push a true point that is otherwise suppressed when the moment presents itself. so name calling don't work, some here have learnt that much already.
If it was a male with testicular cancer, be assured that under the same set of circumstances it would never have been published in this nasty little paper.
LennoxStreet
says...
8:33pm Tue 26 Mar 13
RACE4LIFE
says...
8:43pm Tue 26 Mar 13
I am calm thanks. When this "nasty little rag" stops it's "dirty little agenda" and tactics, maybe it will be treated with some respect. Some of us know the game in hand.
Excuse me while I repeat my lack of concern for this women's plight politically in the face of what has been done to men for decades that nobody cares about.
Do I give a sh** if you don't like that..take a guess.
RACE4LIFE
says...
10:50pm Tue 26 Mar 13
I am not entirely without feeling and I honestly did not like to do it. I had too because of the Echo's behaviour that has been well documented and repeated over the last few years especially. They have deleted and censored hundreds of comments on male cancer issues and D.V victims, not just from me but others also.
If they don't like it then they should stop publishing lies and stop working on false statistics and pushing women's groups who have been well proven to spread misandry and the demonising of men, or undermining male needs to support their own want.
You get back what you put out. that's the deal.
JamesYoung
says...
11:37pm Tue 26 Mar 13
JACKC wrote:This is a very valid point. When my time comes, i would like the option of an easy way out. Millions must be wasted on people who wish for nothing more than a peaceful passing. If this were to be rectified then there would be more available for those that wish to fight on.
What disgraceful comments there are on this subject. I am always angered when some people make comment on when treatment should and shouldn't be given on the NHS. Who are we to judge whether someone is 'worth' the cost of an expensive drug? There but for the grace of God go I ..is never a truer sentiment in this case. Good luck to you Miss Savrasova, you must be feeling pretty desperate and miserable as it is, and I only hope those who don't think you should be given this drug (for whatever reason) are never in your position. The medical 'ethics' in this country are hypocritical, on the one hand people are denied treatment due to cost, and on the other sick/elderly people are not allowed to die with dignity when they so chose, in the way they chose.
RACE4LIFE
says...
11:46pm Tue 26 Mar 13
JamesYoung wrote:A good point.
JACKC wrote:This is a very valid point. When my time comes, i would like the option of an easy way out. Millions must be wasted on people who wish for nothing more than a peaceful passing. If this were to be rectified then there would be more available for those that wish to fight on.
What disgraceful comments there are on this subject. I am always angered when some people make comment on when treatment should and shouldn't be given on the NHS. Who are we to judge whether someone is 'worth' the cost of an expensive drug? There but for the grace of God go I ..is never a truer sentiment in this case. Good luck to you Miss Savrasova, you must be feeling pretty desperate and miserable as it is, and I only hope those who don't think you should be given this drug (for whatever reason) are never in your position. The medical 'ethics' in this country are hypocritical, on the one hand people are denied treatment due to cost, and on the other sick/elderly people are not allowed to die with dignity when they so chose, in the way they chose.
Von Karajan
says...
9:45am Wed 27 Mar 13
LennoxStreet
says...
12:42pm Wed 27 Mar 13
As for Sevtalana Savrasova, if Dorset Cancer Drug Fund doesn't want to swallow the pride by changing wrong decision then let officials collect money in a hat as their personal charity for this patient. I understand she cheated on them being still alive against statistic. Avasting had helped after all.
patience567
says...
10:37am Sat 30 Mar 13
RACE4LIFE wrote:I think you have a valid point that men sometimes get unequal treatments in regard to cancer treatment but I don't think you are going to persuade many people going about it the way you are. I see you have the name RACE4LIFE which is an event open to female runners only. I can see why this is upsetting because it omits men whose relatives get cancer too....
It's funny how you confuse bitter, with stead-fast and not giving in on a principal. There is a difference and your attempts to tune it your way in the eyes of others don't make any difference to the point being made.
I am calm thanks. When this "nasty little rag" stops it's "dirty little agenda" and tactics, maybe it will be treated with some respect. Some of us know the game in hand.
Excuse me while I repeat my lack of concern for this women's plight politically in the face of what has been done to men for decades that nobody cares about.
Do I give a sh** if you don't like that..take a guess.
annotator1 says...
9:42am Wed 20 Mar 13