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Dorset toddler supporting Jeans for Genes day
1:00pm Monday 9th September 2013 in News
A TODDLER from Dorset is helping to raise awareness of children’s genetic disorders.
Two-year-old Lewis Preuss, from Blandford, is supporting UK children’s charity Genetic Disorders UK and the annual fundraiser, Jeans for Genes Day.
People are encouraged to wear their jeans to work or school on Friday, September 20 in return for a donation.
Lewis has a rare genetic condition and is missing one of the body’s 46 chromosomes. It means he is intolerant to touch, his joints stretch farther than normal and he has trouble breathing. Lewis was also born with two holes in his heart and a simple cold could leave him needing oxygen.
His parents Leanne, and Darren, an Army technician, are passionate about raising awareness of rare chromosome disorders and have found the support of Jeans for Genes Day grant charity Unique “invaluable”.
It offers information and advice to families and individuals affected by any rare chromosome disorders, including through a Facebook group where people can share their concerns.
For more information about Jeans for Genes Day and to sign up for a free fundraising pack visit jeansforgenesday.org
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