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MP Oliver Letwin backs Lyme disease charity


WEST Dorset MP Oliver Letwin has thrown his support behind a charity calling for wider recognition of Lyme disease.

Mr Letwin met with members from Lyme Disease Action, which is aiming to get better diagnosis and treatment for sufferers of the disease, after he was inspired by the story of Forston resident Gill Reese.

Mrs Reese, 60, was struck with Lyme disease in 1997 and is one of the founder members of Lyme Disease Action, She wants to make doctors more aware of the condition and wants to see the Government introduce national guidelines for treatment.

Mrs Reese said: “I became ill and the doctors thought I had meningitis, once they realised I hadn’t got meningitis they sent me home with no medical care.

“I quite literally had to find out what was wrong with myself and only found out through a newspaper article that gave me a clue.

“If it wasn’t for that I would probably be six feet under and Lyme Disease Action wouldn’t exist.” Mrs Reese was determined to help others who were going through what she experienced and, having helped to set Lyme Disease Action in 2003, decided to lobby Mr Letwin to back their campaign.

She said: “I went to see Mr Letwin as a constituent to tell him my story and he quickly realised this was just the tip of the iceberg and instead of just helping me he realised the entire Lyme Disease Action charity needed help.”

Mr Letwin met Lyme Disease Action representatives from across the South West and has agreed to fight its cause in Westminster.

Chairman of Lyme Disease Action Stephanie Woodcock said: “We are very grateful that Mr Letwin in West Dorset has been very supportive of our concerns.

“Our concerns are well founded as the Health Protection Agency has recently published new figures for Lyme disease and the cases for the South West are particularly high.

“Both Gill and myself have had the illness and have had to fight for treatment.

“We are aware that there are many other people fighting for the treatment and getting nowhere.”

Mr Letwin said: “The time is coming when we will get a definitive view about this problem and we need to ensure people who have this disease have effective diagnosis and treatment available.

“The current guidelines don’t seem to be allowing that.”


Your Say YourEcho

Dorsetdumpling, Weymouth says...
4:59pm Thu 4 Jun 09

An MP supporting a charity to fight a disease spread by blood sucking parasites????

- no, no really i won't......


Joanne Drayson, GUILDFORD says...
8:01pm Thu 4 Jun 09

Thank you Oliver Letwin for supporting this cause.

I have struggled with Lyme disease for 6 years and finally got my health back after long term antibiotics. Had I and my doctors been aware a short course of antibiotics could have prevented 6 years of pain and disability.

It's time the HPA opened there minds to what is going on and stopped pretending these problems are all in our heads or the aches and pains of daily living.

My symptoms are nearly 100% recovered although they had been severe enough to retire me early from the Civil Service.


uist, Aldenham says...
9:01pm Thu 4 Jun 09

Many thanks to Oliver Letwin for his support. My health began to deteriorate years ago, but I struggled on working until the symptoms completely incapacitated me. None of the GPs or specialists who examined me suggested Lyme - I was told by some that my illness was stress-related and by others that I didn't have an illness at all. I was eventually diagnosed with Chronic Fatigue Syndrome, but I didn't give up and researched my peculiar range of symptoms myself. I found they matched those of Lyme, and I then found treatment with the help of LDA. I've had to pay for private medical care as there was none available on the NHS that I could find. Fortunately I'm now beginning to recover, but it will be a long journey as the Lyme infections weren't treated at their onset but allowed to become chronic. I feel let down by the HPA, who still seem to deny chronic Lyme exists and appear to be doing nothing to help address the gap in NHS expertise in diagnosing and treating complex tick-borne diseases.

Ria Heslop, Colchester says...
9:51am Tue 9 Jun 09

A Big Thank You to Gill Reese, Lyme Disease Action and Oliver Letwin on raising the profile of Lyme Disease and its inappropriate treatment in the UK.

I too was a miss diagnosed case of Lyme Disease and left for 7 years to progress to a severe Neurological state before correct diagnosis.

Due to the lack of support and correct treatment in the UK I personally am under the care of a USA consultant as my case became so severe - all TOTALLY FUNDED BY MYSELF. What could have been a few weeks of an oral antibiotic has now turned in to tens of thousands of pounds to treat, again all out my own financial cost.

Like most UK Lyme patients, we are left without care to a point of being disabled and then left to find the funds for private care, with no support whatsoever form the NHS or UK Health Care System - Totally Unacceptable.

I have also recently met with my local MP who was very supportive and who is working with my husband to take my case to a higher level in government.

Lyme sufferers have to deal with 2 battles - Firstly the daily battle of fighting this terrible Disease and then a second battle of being failed by the NHS Healthcare system, with no support whatsoever.

The Ignorance of the Medical Profession, the ignorance of the Healthy!!!!

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